Indian RRP Registry for Prevention Policy

Anupam Mishra MS, DNB Dip. Can. Prev. (NIH USA)

Associate professor of Otolaryngology, C.S.M.M.U.(K.G.M.C.) Lucknow (U.P.)
Chief Coordinator of R.R.P. Registry

Recurrent respiratory papillomatosis (RRP) is a condition where small tumours grow in the respiratory track (predominantly in the larynx) of children as well as adults. Human papilloma virus (types 6 & 11) is reported to be associated with this condition in a casual relationship. There is no cure for RRP but repeated surgical excision is an acceptable method of controlling the disease, or else these tumours have a tendency to grow ultimately blocking the patient's airway. The occurrence of RRP is quiet rare. The existing management and associated health policies for Indian patients are governed by existing norms of western world. The existing adjuvant therapies are too expensive to be adapted routinely in Indian perspective. The unpredictable recurrence associated with RRP makes patient too non-compliant to be followed up specially amongst the existing health disparities. Hence there is a need to establish its registry for Indian population, which is likely to further enhance the research potential and create sufficient scope to refine health policy management guidelines for a better patient care and follow-up. This registry initially aims to collect the relevant clinical data and thereafter provide public(patient) awareness at later stages.

Through this we invite all otolaryngologists of India who are actively involved in management of RRP, either in government or private hospital to jointly develop this on-line registry. After one time registration (free of cost), a single page patient information as per COLTRERA/DERKAY staging and severity scheme needs to be submitted on-line. The participants-registration ID (permanent) would be used further to submit further information of a followed up or upfront case. Entering information for single patient hardly takes a few minutes. Such honorary participation would be duly recognized on the website and we sincerely hope to have our colleagues' cooperation to facilitate a better management of RRP patients and subsequently develop specific health policy in future.